Virtual conferencing and the future: Communicating within the ‘new normal’
Maintaining the voice of rare diseases in a new, virtual world: Insights from the European Conference on Rare Diseases (ECRD) 2020 Virtual conferencing and the future: Communicating within the ‘new normal’ Utilising digital channels early will yield more effective results. Think beyond just translating your existing assets into hyperlinked versions for sharing. With the tools […]
Rare disease diagnosis remains a key challenge
Maintaining the voice of rare diseases in a new, virtual world: Insights from the European Conference on Rare Diseases (ECRD) 2020 Rare disease diagnosis remains a key challenge Can we drive a change in perceptions and attitudes by reframing rare diseases and stressing the importance of patient groups? Alpharmaxim work closely with industry to raise […]
Newborn screening is essential to improve diagnosis and outcomes
Maintaining the voice of rare diseases in a new, virtual world: Insights from the European Conference on Rare Diseases (ECRD) 2020 Newborn screening is essential to improve diagnosis and outcomes Alpharmaxim work closely with industry to provide education around newborn screening and can help to drive awareness of newborn screening panels. It is important to […]
Artificial intelligence tools will be vital to future diagnoses
Maintaining the voice of rare diseases in a new, virtual world: Insights from the European Conference on Rare Diseases (ECRD) 2020 Artificial intelligence (AI) tools will be vital to future diagnoses Alpharmaxim build strong, compelling and targeted stories, underpinned by scientific and emotional evidence. Tailoring the language and communication style of each stakeholder will help […]
Genome sequencing is the future for rare diseases
Maintaining the voice of rare diseases in a new, virtual world: Insights from the European Conference on Rare Diseases (ECRD) 2020 Genome sequencing is the future for rare diseases Public engagement and education are key to the successful implementation and uptake of genome sequencing. Alpharmaxim develop scientific materials and activities that are built upon compelling […]
Embracing European Reference Networks for patient engagement
Maintaining the voice of rare diseases in a new, virtual world: Insights from the European Conference on Rare Diseases (ECRD) 2020 Embracing European Reference Networks (ERNs) for patient engagement Awareness of ERNs and education around their potential involvement needs to be a core focus to ensure that patients are at the centre of drug and […]
Five more key things we can all learn from rare disease companies
Written by: Adrian Doe Adrian is Account Director at Alpharmaxim Healthcare Communications In this second article, we share five more key things we can all learn from the most successful speciality healthcare companies working in rare diseases and how they help overcome the huge challenges of raising awareness and delivering access to potentially life-changing treatments […]
Five key things we can all learn from rare disease companies
Written by: Adrian Doe Adrian is Account Director at Alpharmaxim Healthcare Communications It can be a huge challenge to help ensure that patients with rare diseases receive an accurate and timely diagnosis and then get access to the right treatments, but the results can be life-changing. This is the first of two articles in which we […]
