Supporting the need for coordinated care on Rare Disease Day 2023
For many people, access to everyday healthcare is simple and straightforward. But for those living with a rare disease, getting the care they need can be a complicated process.
There are approximately 300 million people living worldwide with a rare disease, which often means access to healthcare services can be synonymous with long journeys, waiting times and travel expenses – and above all, isolation.
Everybody deserves equal healthcare opportunities, but to truly change and help the lives of those living with a rare disease, there needs to be a focused effort to improve coordination and personalised care.
For Rare Disease Day 2023, Alpharmaxim has created this video to highlight the need for equitable access to screening, diagnosis and treatment for people living with a rare disease.
We encourage patients and carers to ‘share your colours’ for Rare Disease Day by sharing your stories, so that together we can get the ball rolling…